Asia Atwater, 7

Grand-mal seizures have left Asia's eyebrow, nose and chin, where she bit through her lip, permanently scarred. Less visible, but relentless, "absence seizures" resulting from her "2q23.1 microdeletion" syndrome have robbed her of basic functions like speech. Her mother, Season Atwater, dreams of being able to talk to Asia and take her off her medications.

Isaac Sintz, 7

Isaac suffers from acute renal failure due to the toxic medications he takes for Dravet syndrome, including psychoactive sedatives such as Clonazepam and benzodiazepine.

"We live in crisis mode," said his mother, April Sintz who has thought of moving to Colorado to obtain a cannabis oil shown to have miraculous seizure-calming effects in some kids. "But I can't take the risk of getting caught doing something judged illegal. I can't jeopardize my family."

Alexander Park, 10

Alexander has hundreds of seizures a day from Lennox-Gasteaut syndrome. "We have tried everything available and nothing has worked," said his mother, Marina Alexandrescu.

Payton Nelson, 9

"We would love to meet our son for the first time without being on several seizure medications," said Katie Nelson of her 9-year-old son, Payton who has atypical Dravet syndrome. "He started meds at 10-days-old and has never been off them."

Amelia Glenn, 19

While the long-term effects of cannabis oil aren't known, the harms of uncontrolled seizures and anti-seizure drugs are apparent, said Karen Glenn whose daughter, Amelia has Dravet syndrome. "She cannot read or write, dress or bathe herself or toilet unaided. She needs round-the-clock supervision. She is never safe."

Connor Campbell, 6

Connor receives much love and understanding from his 11-year-old sister, Katie in managing his intractable epilepsy and the more than 100 seizures he has daily. "She is his best friend most trusted babysitter," said their mom, Emilie Campbell, the wife of Neon Trees bassist Branden Campbell.

Jessie Christensen, 13
Kimmie Hansen, 15

Jessie and Kimmie have become fast friends through family functions organized by a Dravet syndrome support group. Kimmie loves to tickle Jessie and make her laugh.

Leah McClellan, 2

Leah hasn't moved, cried or smiled since she started seizing at five months of age. "We would love the opportunity to meet Leah again," said her mother, April McClellan. "We would love to interact with her and see her smiling face again. We miss her so much."

Charley Grossman, 7

Countless daily seizures stole from Charley the thing she loved even more than Spongebob — dancing. Today, long spells of mental stupor leave her angry, lost and sometimes unable to recognize her mother. She asks if she's going to die like her cousin, who also had intractable epilepsy.

Holden Cromar, 6

Holden is a year behind in school but his mom, Mandi Cromar, has hopes he'll live a "normal" life, despite his intractable epilepsy.

"He can jump out of a seizure, shake his butt at you, laugh and run away. He's my naughty, funny kid…But I've talked to other parents who have said, ‘That's how my kid's seizures started and I just bought him a wheelchair,'" said Cromar who packed up her family last December and moved to Colorado Springs to obtain a cannabis oil shown to calm seizures in some kids.

Isabelle Knowlton, 9

"Izzie" has Rett and Angelman syndromes. She's allergic to 70 percent of all seizure medications and her mother, Syndi Knowlton fears that if she begins to have cluster seizures, the only choice might be to induce a coma to stop them.

Anavey Jensen, 7

Anavey has many generalized absence and tonic clonic seizures, although the cause is unknown. Anavey complains that her current medications "make her head feel strange."

Peyton Kohler, 10

Peyton Kohler is fun-loving and athletic. But his worsening Dravet syndrome — 70 to 100 seizures a month — has made him forgetful, prone to injury while playing his favorite sports, withdrawn and afraid.

Addison Hyer, 7

"Addy" has Doose and Lennox-Gastaut syndromes. Her violent seizures have knocked out teeth and often leave her cut and bruised. She has to be strapped to the chair during meals and accompanied down stairs and when using the toilet. The "valiant" 7-year-old is almost always smiling but is slowly "slipping away," said he mother, Rebecca Hyer.

Austin Beardall, 20

This wanna-be superhero, Austin, has as many as eight seizures in a day from intractable epilepsy. He is being weaned off one of his three seizure-control medicines because it causes severe tremors in his hands, making it impossible for him to feed or dress himself.

Glenn David Maughan, 11

Glenn, more affectionately known as "Bug," was a doting big brother before his brain was assaulted by daily seizures due to a cerebral folate deficiency.

"To run outside, to climb and ride bikes like he used to — having him enjoy those things again — would be a miracle that would bring all our family back," said his mother, Annette Maughan who fears her son may never find love, be married or experience wonder in the eyes of his own child. "I'll be lucky if he survives another two years."

Cutler Henrie, 8

Cutler is a sweet-spirited boy who loves animals and his little sister and brother. Diagnosed in the womb with Dandy-Walker malformation and later with cortical dysplasia, he seizes so often and so hard that his lips turn blue. Surgery and eight different medications have brought no relief; he wakes most mornings from fitful nights of sleep, crying, "It just won't stop."

Porter Holmes, 6

Porter has a constant companion in Thumper, his service dog of one year to help with his seizures stemming from Dravet syndrome.

Terisa Sitton, 16

Terisa Sitton wishes, like most 16-year-olds, to own her own car one day. But betrayed by her body, which endures on average three seizures a day, she will probably never learn to drive.